Stakeholders’ Views on Data Sharing and Multisite Research
نویسندگان
چکیده
منابع مشابه
Stakeholders' views on data sharing in multicenter studies.
AIM To understand stakeholders' views on data sharing in multicenter comparative effectiveness research studies and the value of privacy-protecting methods. MATERIALS & METHODS Semistructured interviews with five US stakeholder groups. RESULTS We completed 11 interviews, involving patients (n = 15), researchers (n = 10), Institutional Review Board and regulatory staff (n = 3), multicenter r...
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Increased global sharing of public health research data has potential to advance scientific progress but may present challenges to the interests of research stakeholders, particularly in low-to-middle income countries. Policies for data sharing should be responsive to public views, but there is little evidence of the systematic study of these from low-income countries. This qualitative study ex...
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BACKGROUND There is increasing recognition of the importance of sharing research data within the international scientific community, but also of the ethical and social challenges this presents, particularly in the context of structural inequities and varied capacity in international research. Public involvement is essential to building locally responsive research policies, including on data sha...
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Purpose: Sharing research data leads to the reusing that data. The purpose is to describe the status of sharing and reusing research data amongst researchers. This examines the attitude, experience and barriers in reusing research data. Methodology: Applied quantitative survey method was used. Population was 154 participants all faculty members of Azarbaijan Shahid Madani University. Instrum...
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We submit to the Open Track a new system for browsing Linked Data, called SView. The main philosophy of this system is to decompose the work on producing and consuming Linked Data into finegrained tasks and distribute them to different people, all of whom are given incentives for participating in. Specifically, it enables general Web users to conveniently browse entities and interact with Linke...
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ژورنال
عنوان ژورنال: Journal of Patient-Centered Research and Reviews
سال: 2017
ISSN: 2330-0698
DOI: 10.17294/2330-0698.1572